Can-SOLVE CKD researchers and patient partners came together in the spirit of co-learning recently for two days of patient-oriented research training.
The training sessions, held in Toronto on December 1 and 2, presented the first two modules of the Foundations in Patient-Oriented Research curriculum. The curriculum, which is currently being piloted across Canada, aims to build partnerships between researchers and patients that are based on inclusiveness and mutual respect.
“This training is based on a co-learning approach that enables patients, researchers, and policy-makers to learn from each other’s perspectives, experience, and expertise,” said Helen Chiu, Can-SOLVE CKD Patient Engagement Liaison, who co-facilitated the training session. “Enhancing shared understanding of patient-oriented research and the valuable roles that patients can play will help build meaningful and mutually beneficial relationships that are crucial for the success of our research projects.”
Module 1 of the curriculum introduces participants to the concept of patient-oriented research and describes how it differs from traditional approaches to health research. The module also introduces the various roles that patients can play in the research process, including governance, priority setting, peer review, as well as the conduct of research itself.
Module 2 provides an overview of the fundamentals of health research in Canada. It helps all participants understand the purpose of health research, the various types of studies, and the stages of the research process.
“It was amazing to see everyone engaging in meaningful discussions,” said Leah Getchell, Can-SOLVE CKD patient council member and training co-facilitator. “There were many ‘aha’ moments throughout the training and real commitment to take what was learned and apply it within Can-SOLVE.”
Both modules will be delivered in Calgary in January and the third module from CIHR’s curriculum, which focuses on building partnerships and consolidating teams, will be offered to Can-SOLVE CKD Network members at the upcoming annual meeting in May.
The Foundations in Patient-Oriented Research curriculum can also be accessed through the provincial SPOR SUPPORT Units.