It has been an eventful and exciting year for all of us across the Can-SOLVE CKD Network. Thanks to the tireless efforts of our patient partners, researchers, and operations team, we have built the foundations of a national research network that will transform care and outcomes for all Canadians living with chronic kidney disease.
Earlier this year, we were privileged to receive a five-year grant from the Canadian Institutes of Health Research through the Strategy for Patient-Oriented Research competition. This announcement was the culmination of years of dedicated work by Canada’s kidney research and patient communities to set research priorities and create core infrastructures. Their efforts have built a tremendous platform that will support the Can-SOLVE CKD Network to achieve its goals over the next five years.
While much work remains, we are proud of the progress we have made in 2016. Among the milestones we achieved this year:
- Our research teams are developing protocols for 18 projects organized around the questions and issues that matter most to patients.
- A Patient Council and an Indigenous Peoples’ Engagement and Research Council were convened to ensure all Can-SOLVE CKD activities address and respect the unique needs of patients, including Indigenous peoples. We also delivered patient-oriented research training to our patient partners and research teams.
- We formed a robust governance structure, including a diverse range of committees and working groups to provide expert oversight and operational support.
- Partnerships were established with more than 30 funders and other key allies that will enable us to achieve our vision.
- We assembled a core operations team to facilitate and support all of the network’s activities.
The scope of what we are building is significant, but so is the challenge we are confronting. For the more than 4 million Canadians living with chronic kidney disease, it is crucial that we increase the use of evidence-informed care that will improve their health and quality of life.
Looking ahead to 2017, we are set to move forward with an ambitious patient-oriented research agenda. With the support of CIHR and our funding partners, we will establish 18 research projects organized around priority issues and establish core infrastructures to enhance research in kidney disease. We will strive to ensure research findings are applied to practice so that all Canadians with or at risk for chronic kidney disease can access the best available treatment and care. Most importantly, we will work with our Patient Council and Indigenous Peoples’ Engagement and Research Council to ensure the patient voice continues to be at the centre of everything we do.
On behalf of the entire Can-SOLVE CKD Network, we wish you a safe and happy holiday season.
Dr. Adeera Levin & Dr. Braden Manns
Can-SOLVE CKD Network