More than 90 participants, including nearly 30 patient partners, came together in Montreal this month for the 2017 Can-SOLVE CKD Network Annual Meeting. It was an exciting and productive week that highlighted the outstanding patient-oriented kidney research taking place across Canada.
The theme of this year’s meeting was “Partnerships in Patient-Oriented Research,” and participants were encouraged to celebrate and build on the diverse collaborations that are at the centre of the Can-SOLVE CKD Network.
In just three days, we accomplished a great deal:
- We convened a sharing circle for all patient partners to reflect on their personal experience with kidney disease and health research.
- We shone a spotlight on three research projects and the Canadian Nephrology Trials Network while also sharing successes in patient-oriented research.
- We learned about bringing Indigenous perspectives into health research from Dr. Malcolm King.
- We delivered Module 3 of the Foundations in Patient-Oriented Research training curriculum to more than 65 network members.
- We facilitated 12 project team meetings and three committee meetings, including in-person gatherings of the Patient Council and Indigenous Peoples’ Engagement and Research Council.
- We demonstrated patient engagement in research by hosting a live webinar on the living donor kidney transplantation project co-presented by researchers and patients.
- We co-hosted a joint symposium on the kidney failure risk equation in partnership with the Canadian Association of Nephrology Administrators.
- We highlighted Can-SOLVE CKD research and patient engagement in a keynote presentation at the Canadian Society of Nephrology AGM.
We are excited to be breaking new ground in involving patients in a research network, and in having patients attend portions of a scientific meeting. We will continue to try to improve the experience for all patients involved in Can-SOLVE CKD.
The next Can-SOLVE CKD Network Annual Meeting will take place in Vancouver in early May 2018.