The Indigenous Peoples’ Engagement and Research Council (IPERC) guides Can-SOLVE CKD’s activities to account for the unique aspects of patient-oriented research involving First Nations, Inuit, and Métis.
“We work with the network to develop resources (which help to) support culturally competent engagement with Indigenous peoples and communities,” says IPERC Coordinator Craig Settee.
As one of two governing bodies within the Can-SOLVE CKD Network, its members are involved in numerous aspects of the network. Indigenous representation from IPERC can be felt throughout the network, including the Can-SOLVE CKD Executive Committee, which recently welcomed two new Indigenous members, Dr. Malcolm King and Mary Beaucage.
IPERC members come from Indigenous territories and nations from all over Canada including Kwakwaka’wakw, Nuu-chah-nulth, Inuvialuit, Anishinaabe, Cree and Métis.
Panikpak (Letitia) Pokiak, who is Inuvaluit from Tuktuuyaqtuuq, a small town on the Arctic Ocean in the Inuvialuit Settlement Region, notes the importance of sharing distinct Inuit experiences.
“Creating space for Métis, First Nations or Inuit voices and experiences changes the narrative of our collective colonial history and the impacts felt by Indigenous communities,” says Letitia.
Métis representation is similarly important, says IPERC co-chair and patient partner Arlene Desjarlais.
“I can freely say that I’m living as a Métis person who is learning about herself and her culture and the world around her,” says Desjarlais. “And that specifically is what Can-SOLVE CKD has brought into my life, specifically IPERC.”