More than 40 members of Canada’s kidney community came together in July at a virtual workshop to shape the future of KidneyLink, an exciting platform for enhancing patient-oriented kidney research.
KidneyLink is an online portal that connects patient partners to opportunities for research involvement and curated educational resources. Developed by Can-SOLVE CKD, the website launched in November 2019. The network is now planning the second phase of KidneyLink to build upon this foundation and enhance its role as a one-stop shop for patient engagement, education, and knowledge mobilization.
Achieving this aim requires the collective wisdom of our partners. On July 5, Can-SOLVE CKD brought together patients, researchers, and health care providers from eight provinces to develop a vision for KidneyLink that reflects the diverse perspectives of Canada’s kidney community. Participants took part in breakout group discussions that sought to understand the value KidneyLink can provide and the best approaches to maximize the site’s uptake as a patient engagement tool.
The feedback provided by workshop participants will be extremely valuable in shaping the revised vision and next steps for KidneyLink. A detailed report is now available, summarizing the major themes identified during the workshop.
As a next step, Can-SOLVE CKD is convening a working group to implement the Phase 2 KidneyLink vision. This group will meet twice per month starting in September. Individuals who are interested in participating can contact Graham Pollock (firstname.lastname@example.org).
Read the KidneyLink workshop report