The inaugural Barbara Ann LeGay Award for Patient-Oriented Research was presented to Patient Council Co-Chair Mike McCormick. We were honoured that Barb’s husband Barry Abbott and her great friend Anne MacPhee were able to join us to present this special award. (Watch the presentation)
A network-wide discussion explored ideas for a patient research portal that will help link patients to kidney research information and participation opportunities.
Network members took part in the KAIROS Blanket Exercise to learn about the history of colonization and its impact on Indigenous health.
A Funders’ Forum brought together Can-SOLVE CKD partners to discuss network sustainability.
12 research project team meetings were held.
The Can-SOLVE CKD Steering Committee held an in-person meeting.
Can-SOLVE CKD co-hosted a joint symposium on kidney disease symptoms in partnership with the Canadian Association of Nephrology Administrators and the Canadian Society of Nephrology. Patient perspectives were shared in a special video presentation, and Can-SOLVE CKD patient partners Mary Beaucage and Paul Duperron participated in a live panel discussion.
Several focus groups were held in which patient partners and researchers shared their experiences engaging as partners within Can-SOLVE CKD research teams. More than 24 participants, including 15 patient partners and 9 researchers took part in these focus groups. Participants will be contacted in the summer to further discuss their experiences.