I am a patient-partner with the Can-SOLVE CKD Network. I am a 13-year transplant recipient, and I currently work for The Kidney Foundation (Northern Alberta & The Territories Branch) as their Community Development and Communications Manager. In 2020, I graduated with a Master of Public Health (policy & management) degree from the University of Alberta.
I was born, raised, and live on Treaty 6 territory (Edmonton, Alberta). During pre-COVID times, you would find my partner and I checking out Edmonton’s newest local restaurants and breweries, walking along the river valley with our two dogs, and spending time with our family. During our summers, we would typically be exploring a new nook somewhere in Europe.
Describe some of your experience with knowledge translation, patient engagement, and kidney research
I was drawn to Can-SOLVE CKD and the Knowledge User/Knowledge Translation Committee because I recognize it was time to use my voice. Like many others, I’ve questioned the value and legitimacy of my experience. How could my experience represent the diverse and unique people and experience of this community? For too long, I thought it had little value. My work with the Patient and Community Engagement Research (PaCER) program empowered me to find my voice, realize the value in my experience, and grow my skill set to create and maintain safe and inclusive spaces for other patients to do the same.
What do you hope to contribute as a member of the Knowledge User/Knowledge Translation Committee?
As a transplant recipient/former dialysis patient, health research enthusiast, and public health policy nerd, I want to use my voice, lived experience, and professional experience to help support the advancement of kidney health outcomes via the Knowledge User/Knowledge Translation committee.
Why is it important for patients to play a role in knowledge translation?
Kidney health research must be rooted in addressing patient concerns and improving health outcomes. Therefore, patients must be at the core of health research and knowledge translation, so research remains accessible, relevant, and patient health literacy grows. Through my work with The Kidney Foundation, I’ve connected with countless patients and caregivers in Alberta’s kidney and transplant community. I’ve heard their stories and their concerns. I am committed to bringing my experience and their experience to ensure Can-SOLVE CKD’s work reflects patient concerns and remains accessible.