As a chronic condition, kidney disease is often managed not just in the hospital or clinic, but also through self-management strategies on a daily basis at home. Kidney patients and their families in Canada have emphasized the need for more resources to support them in their self-management goals and practices.
As a result, a Can-SOLVE CKD project created an evidence-based website called My Kidneys My Health, which was designed by patients, for patients. It aims to promote communication between patients and health care providers and empower patients to live well with kidney disease. Feedback from kidney patients who have used the website has been overwhelmingly positive, and preliminary data from a feasibility study has shown that My Kidneys My Health can improve self-efficacy.
The team is now working to further enhance the website by adapting it to support the unique characteristics, preferences, and needs of diverse populations (i.e., Indigenous, gender-diverse, and/or ethnic minority populations) who have non-dialysis kidney disease. In addition, they will explore integrating elements of peer support into My Kidneys My Health.