Project Overview

Heart disease is very common in people with chronic kidney disease (CKD), and is a major cause of hospitalization, reduced quality of life, and shortened survival. When people with CKD develop heart problems they are much less likely to receive tests and procedures for their heart than people without CKD. We will develop tools that can help doctors share personalized information on the benefits versus risks of having a heart procedure, and help patients better communicate their own values and preferences to their doctor. We are working directly with patients and health care providers to understand the experiences and challenges of decision-making in these situations, and collecting information that will be used to develop strategies to help patients and health care provider make better decisions.

Our project will be completed in three phases, which involve patients and their health care providers throughout the process. Phase 1 will identify the information that is most important and the value that patients and doctors place on this knowledge when making these decisions. In Phase 2, patients, health care providers, and researchers will work together to combine this information to develop a ‘decision-aid’, which is an information and communication tool that will help patients and doctors make decisions together. In Phase 3, we will test how well this tool works by using it with patients and doctors and examining how it affects their experience and decisions. If we are successful, we believe we can help patients and doctors be more confident in their decision-making, and help them arrive at the treatment option that is most appropriate for each individual.

APPROACH: Risk prediction to support shared decision-making for managing heart disease

Project lead(s):

Dr. Matthew James and Dr. Stephen Wilton

Patient lead(s):

Carol Connolly

Research theme(s):

Heart Disease

Project video

Visual Abstract

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    Canadian Journal of Kidney Health and Disease

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    Research Project: Living Donor

  • A Quality Improvement Intervention to Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD) in Patients With Chronic Kidney Disease: Clinical Research Protocol of a Cluster-Randomized Clinical Trial

    Canadian Journal of Kidney Health and Disease

    Yohanna S, Naylor KL, Mucsi I, McKenzie S, Belenko D, Blake PG, Coghlan C, Dixon SN, Elliott L, Getchell L, Ki V, Nesrallah G, Patzer RE, Presseau J, Reich M, Sontrop JM, Treleaven D, Waterman AD, Zaltzman J, Garg AX

    Research Project: Living Donor

  • An eHealth self-management intervention for adults with chronic kidney disease, My Kidneys My Health: a mixed-methods study

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    Donald M, Beanlands H, Straus S, Smekal M, Gil S, Elliott MJ, Harwood L, Waldvogel B, Delgado M, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Tu K, Hemmelgarn BR

  • Risk of CKD Progression and Quality of Care Indicators in the Primary Care Setting

    American Journal of Kidney Diseases

    Yuen J, Harasemiw O, Singer A, Bello A, Ronksley PE, Bohm C, Drummond N, Tangri N

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  • Addressing Inequities in Kidney Care for Indigenous People in Canada

    Journal of the American Society of Nephrology

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    Research Project: AdDIT

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    Canadian Journal of Kidney Health and Disease

    Smekal M, Gil S, Donald M, Beanlands H, Straus S, Herrington G, Sparkes D, Harwood L, Tong A, Grill A, Tu K, Waldvogel B, Large C, Large C, Novak M, James M, Elliott M, Delgado M, Brimble S, Samuel S, Hemmelgarn BR.

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  • Patient Perspectives on Integrating Risk Prediction Into Kidney Care: Opinion Piece

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    Journal of Patient-Reported Outcomes

    Davison S, Klarenbach S, Manns B, Schnick-Makaroff K, Buzinski R, Corradetti B, Short H, Johnson J

  • Development and Preliminary Psychometric Testing of an Adult Chronic Kidney Disease Self-Management (CKD-SM) Questionnaire

    Canadian Journal of Kidney Health and Disease

    Smekal MD, Donald M, Beanlands H, Straus S, Herrington G, Waldvogel B, Sparkes D, Delgado M, Bello A, Hemmelgarn BR

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