Project Overview
Patients with chronic kidney disease need to balance their complex medical condition with the demands of daily life while maintaining emotional well-being. This research project aims to understand how we can empower patients to self-manage their chronic kidney disease to improve disease progression and overall patient experience and well-being.
To date, we have reviewed and summarized self-management strategies from the literature, and surveyed chronic kidney disease clinics across Canada to identify the strategies they are using to assist patients and caregivers in managing chronic kidney disease. Our next steps are to identify and prioritize self-management strategies that are important to adults with chronic kidney disease by involving patients and their caregivers. Their perspectives and involvement will direct the development of a range of self-management support strategies than can be individualized to patients’ unique situations, needs, priorities and preferences. At the end of this process, we will use the findings to refine and test selected self-management support strategies, including the use of a self-management tool targeting patients, to determine whether they are effective in improving disease control, as well as the patient’s experience of well-being and satisfaction with care.
Project Newsletters
- Issue 15: December 2022
- Issue 14: Spring 2022
- Issue 13: Fall 2021
- Issue 12: Spring 2021
- Issue 11: Fall 2020
- Issue 10: Winter 2020
- Issue 9: Winter 2019
- Issue 8: Spring 2019
- Issue 7: Fall 2018
- Issue 6: Spring/Summer 2018
- Issue 5: Winter 2018
- Issue 4: Fall 2017
- Issue 3: Summer 2017
- Issue 2: Spring 2017
- Issue 1: Winter 2017
Publications
Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
CMAJ Open
Elliott MJ, Donald M, Farragher J, Verdin N, Love S, Manns K, Baragar B, Sparkes D, Fox D, Hemmelgarn BR
Research Project: Self-Management
Keywords: Chronic Kidney Disease, Self-Management, Peer Support
Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop
CMAJ Open
Donald M, Beanlands H, Straus S, Ronksley P, Tam-Tham H, Finlay J, Smekal M, Elliott MJ, Farragher J, Herrington G, Harwood L, Large CA, Large CL, Waldvogel B, Delgado ML, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Tu K, Hemmelgarn BR
Research Project: Self-Management
Keywords: Self-Management, Patient-Centred Care
Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study
American Journal of Kidney Diseases
Donald M, Beanlands H, Straus S, Ronksley P, Tam-Tham H, Finlay J, MacKay J, Elliott M, Herrington G, Harwood L, Large CA, Large CL, Waldvogel B, Sparkes D, Delgado M, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Hemmelgarn BR
Research Project: Self-Management
Keywords: Self-Management, Patient-Centred Care
Understanding Adults With Chronic Kidney Disease and Their Caregivers’ Self-Management Experiences: A Qualitative Study Using the Theoretical Domains Framework
Canadian Journal of Kidney Health and Disease
Baay S, Hemmelgarn B, Tam-Tham H, Finlay J, Elliott MJ, Straus S, Beanlands H, Herrington G, Donald M
Research Project: Self-Management
Keywords: Self-Management
JMIR Formative Research
Donald M, Beanlands H, Straus SE, Smekal M, Gil S, Elliott MJ, Herrington G, Harwood L, Waldvogel B, Delgado M, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Tu K, Farragher J, Hemmelgarn BR.
Research Project: Self-Management
Keywords: Self-Management, Patient Engagement
An eHealth self-management intervention for adults with chronic kidney disease, My Kidneys My Health: a mixed-methods study
CMAJ Open
Donald M, Beanlands H, Straus S, Smekal M, Gil S, Elliott MJ, Harwood L, Waldvogel B, Delgado M, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Tu K, Hemmelgarn BR
Research Project: Self-Management
Keywords: Self-Management, Patient-Reported Outcome Measures
Canadian Journal of Kidney Health and Disease
Smekal M, Gil S, Donald M, Beanlands H, Straus S, Herrington G, Sparkes D, Harwood L, Tong A, Grill A, Tu K, Waldvogel B, Large C, Large C, Novak M, James M, Elliott M, Delgado M, Brimble S, Samuel S, Hemmelgarn BR.
Research Project: Self-Management
Keywords: Chronic Kidney Disease, Self-Management
Development and Preliminary Psychometric Testing of an Adult Chronic Kidney Disease Self-Management (CKD-SM) Questionnaire
Canadian Journal of Kidney Health and Disease
Smekal MD, Donald M, Beanlands H, Straus S, Herrington G, Waldvogel B, Sparkes D, Delgado M, Bello A, Hemmelgarn BR
Research Project: Self-Management
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