Project Overview
Patients with chronic kidney disease need to balance their complex medical condition with the demands of daily life while maintaining emotional well-being. This research project aims to understand how we can empower patients to self-manage their chronic kidney disease to improve disease progression and overall patient experience and well-being.
To date, we have reviewed and summarized self-management strategies from the literature, and surveyed chronic kidney disease clinics across Canada to identify the strategies they are using to assist patients and caregivers in managing chronic kidney disease. Our next steps are to identify and prioritize self-management strategies that are important to adults with chronic kidney disease by involving patients and their caregivers. Their perspectives and involvement will direct the development of a range of self-management support strategies than can be individualized to patients’ unique situations, needs, priorities and preferences. At the end of this process, we will use the findings to refine and test selected self-management support strategies, including the use of a self-management tool targeting patients, to determine whether they are effective in improving disease control, as well as the patient’s experience of well-being and satisfaction with care.
Project Newsletters
- Issue 15: December 2022
- Issue 14: Spring 2022
- Issue 13: Fall 2021
- Issue 12: Spring 2021
- Issue 11: Fall 2020
- Issue 10: Winter 2020
- Issue 9: Winter 2019
- Issue 8: Spring 2019
- Issue 7: Fall 2018
- Issue 6: Spring/Summer 2018
- Issue 5: Winter 2018
- Issue 4: Fall 2017
- Issue 3: Summer 2017
- Issue 2: Spring 2017
- Issue 1: Winter 2017
Publications
Comparison of Clinical and Social Characteristics of Canadian Youth Living with Type 2 and Type 1 Diabetes
Canadian Journal of Diabetes
Carino M, Elia Y, Sellers E, Curtis J, McGavock J, Scholey J, Hamilton J, Clarson C, Pinto T, Hadjiyannakis S, Mertens L, Samaan MC, Ho J, Nour M, Panagiotopoulos C, Jetha M, Gabbs M, Mahmud FH, Wicklow B, Dart A
Keywords: type 2 diabetes, Type 1 diabetes
Evaluation of novel glomerular filtration rate estimation equations in adolescents and young adults with type 1 diabetes
Journal of Diabetes and its Complications
Gaebe K, White CA, Mahmud FH, Scholey JW, Elia YT, Sochett EB, Cherney DZ
Research Project: AdDIT
Keywords: Glomerular Filtration Rate, Type 1 diabetes
Hyperfiltration, urinary albumin excretion, and ambulatory blood pressure in adolescents with Type 1 diabetes mellitus
American Journal of Physiology – Renal Physiology
Lovshin JA, Škrtić M, Bjornstad P, Moineddin R, Daneman D, Dunger D, Reich HN, Mahmud F, Scholey J, Cherney DZI, Sochett E
Research Project: AdDIT
Keywords: Diabetes, Cardiovascular Disease
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