Project Overview

Patients with chronic kidney disease need to balance their complex medical condition with the demands of daily life while maintaining emotional well-being. This research project aims to understand how we can empower patients to self-manage their chronic kidney disease to improve disease progression and overall patient experience and well-being.

To date, we have reviewed and summarized self-management strategies from the literature, and surveyed chronic kidney disease clinics across Canada to identify the strategies they are using to assist patients and caregivers in managing chronic kidney disease. Our next steps are to identify and prioritize self-management strategies that are important to adults with chronic kidney disease by involving patients and their caregivers. Their perspectives and involvement will direct the development of a range of self-management support strategies than can be individualized to patients’ unique situations, needs, priorities and preferences. At the end of this process, we will use the findings to refine and test selected self-management support strategies, including the use of a self-management tool targeting patients, to determine whether they are effective in improving disease control, as well as the patient’s experience of well-being and satisfaction with care.

Strategies to enhance patient self-management of CKD

Project lead(s):

Dr. Brenda Hemmelgarn

Patient lead(s):

Gwen Herrington

Research theme(s):

Self-Management, Kidney Care

Project video

Visual Abstract

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Project Newsletters

Publications

  • Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop

    CMAJ Open

    Elliott MJ, Donald M, Farragher J, Verdin N, Love S, Manns K, Baragar B, Sparkes D, Fox D, Hemmelgarn BR

    Research Project: Self-Management

    Keywords: Chronic Kidney Disease, Self-Management, Peer Support

  • Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop

    CMAJ Open

    Donald M, Beanlands H, Straus S, Ronksley P, Tam-Tham H, Finlay J, Smekal M, Elliott MJ, Farragher J, Herrington G, Harwood L, Large CA, Large CL, Waldvogel B, Delgado ML, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Tu K, Hemmelgarn BR

    Research Project: Self-Management

    Keywords: Self-Management, Patient-Centred Care

  • Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study

    American Journal of Kidney Diseases

    Donald M, Beanlands H, Straus S, Ronksley P, Tam-Tham H, Finlay J, MacKay J, Elliott M, Herrington G, Harwood L, Large CA, Large CL, Waldvogel B, Sparkes D, Delgado M, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Hemmelgarn BR

    Research Project: Self-Management

    Keywords: Self-Management, Patient-Centred Care

  • Understanding Adults With Chronic Kidney Disease and Their Caregivers’ Self-Management Experiences: A Qualitative Study Using the Theoretical Domains Framework

    Canadian Journal of Kidney Health and Disease

    Baay S, Hemmelgarn B, Tam-Tham H, Finlay J, Elliott MJ, Straus S, Beanlands H, Herrington G, Donald M

    Research Project: Self-Management

    Keywords: Self-Management

  • A Web-Based Self-Management Support Prototype for Adults With Chronic Kidney Disease

    JMIR Formative Research

    Donald M, Beanlands H, Straus SE, Smekal M, Gil S, Elliott MJ, Herrington G, Harwood L, Waldvogel B, Delgado M, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Tu K, Farragher J, Hemmelgarn BR.

    Research Project: Self-Management

    Keywords: Self-Management, Patient Engagement

  • An eHealth self-management intervention for adults with chronic kidney disease, My Kidneys My Health: a mixed-methods study

    CMAJ Open

    Donald M, Beanlands H, Straus S, Smekal M, Gil S, Elliott MJ, Harwood L, Waldvogel B, Delgado M, Sparkes D, Tong A, Grill A, Novak M, James MT, Brimble KS, Tu K, Hemmelgarn BR

    Research Project: Self-Management

    Keywords: Self-Management, Patient-Reported Outcome Measures

  • Content and quality of websites for patients with chronic kidney disease: An environmental scan

    Canadian Journal of Kidney Health and Disease

    Smekal M, Gil S, Donald M, Beanlands H, Straus S, Herrington G, Sparkes D, Harwood L, Tong A, Grill A, Tu K, Waldvogel B, Large C, Large C, Novak M, James M, Elliott M, Delgado M, Brimble S, Samuel S, Hemmelgarn BR.

    Research Project: Self-Management

    Keywords: Chronic Kidney Disease, Self-Management

  • Development and Preliminary Psychometric Testing of an Adult Chronic Kidney Disease Self-Management (CKD-SM) Questionnaire

    Canadian Journal of Kidney Health and Disease

    Smekal MD, Donald M, Beanlands H, Straus S, Herrington G, Waldvogel B, Sparkes D, Delgado M, Bello A, Hemmelgarn BR

    Research Project: Self-Management

    Keywords: Chronic Kidney Disease, Self-Management, Patient-Reported Outcome Measures

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