The research projects listed below will identify kidney disease earlier and support those who are at highest risk of negative outcomes.

Projects are based on priority questions identified by patients with early or advanced chronic kidney disease, their families and care providers.


Defining risk and personalizing treatment of patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD)

Genetic screening and tests of kidney size can help nephrologists identify high-risk patients for new or experimental treatments, moderate-risk patients for close surveillance, and low-risk patients for reassurance. These tests, however, are costly and not widely available. We will confirm the usefulness of these tests and make them less costly, allowing for increased use in clinics.


APPROACH: Risk prediction to support shared decision-making for managing heart disease

Heart disease is a major cause of hospitalization, reduced quality of life, and shortened survival in people with kidney disease. We will develop tools to help doctors share personalized information with patients on the benefits versus risks of having a heart procedure, and help patients better communicate their own values and preferences.