Project Leads: Joanne Kappel & Beth Horsburgh
Patient Group: Indigenous patients with kidney disease
Regions: British Columbia, Saskatchewan, Ontario

Indigenous patients with CKD and their families face unique challenges related to education, language, poverty, distance from care, and the legacy of colonization and residential schools. As a result, timely access to medical care and, ultimately, late referral to kidney health professionals impact patient/family knowledge about treatment options for failing kidneys. Improving the ability to better support Indigenous patients and their families when making treatment decisions is important.

In partnership with Indigenous patients and families who have or are affected by CKD, we will work together in participating communities to develop a unique suite of educational approaches for treatment options for failing kidneys specifically for the Indigenous population. These educational approaches could take many forms including paper (translated into local language), storyboards, decision aids, videos, focus groups, and peer supports. The suite of educational approaches will be co-developed in several Indigenous populations across Saskatchewan, British Columbia, and Ontario. The educational approaches will be evaluated in one or two other Indigenous communities for understanding and usability. Our work together will provide educational materials for treatment options for failing kidneys tailored for Indigenous patients and families served by the CKD clinics across Canada.