Improving care for kids with kidney disease
The PRO-Kid project is developing a new tool to better assess symptoms in children living with kidney disease.
In the space of two years, Charles Cook received a new heart and a kidney. The transplants not only saved his life but also instilled a deep commitment to helping others in need. As a member of the Can-SOLVE CKD Patient Governance Circle and the Transplant Ambassador Program, Cook is using his voice and his story to help pave the way for future patients to receive better care.
Manuel is working with Can-SOLVE CKD as a patient partner and member of the Knowledge Translation/Knowledge User Committee, where he not only shares his experience as a patient but also his expertise in research, policy and knowledge translation.
Gwen's experience of dialysis underscores the importance of self-management and of being involved in kidney research
Mary Beaucage is a member of the Knowledge User/Knowledge Translation Committee and the Research Operations Committee, and co-chair of the Patient Governance Circle.
Kidney Quarterly: Issue 9
- The importance of EDI in research
- How Can-SOLVE CKD is advancing EDI in Phase 2
- Gender-diverse and Indigenous-specific content to be added to the My Kidneys My Health website
- Can-SOLVE CKD and the Black Health Alliance partner up with a shared EDI vision
Kidney Quarterly: Issue 8
- Implementation science helps overcome barriers to change
- New tool offers a smoother pathway to implementing research
- The implementation of APPROACH projects sees positive results
- Finding out what does – or doesn’t – help dialysis patients
Kidney Quarterly: Issue 7
- Learning Tree cultivates skills for patient-oriented research
- New position strengthens commitment to cultural competency
- Unlocking KidneyLink’s potential for patient-researcher connections
- Fostering excellence in nephrology trials
Kidney Quarterly: Issue 6
- Knowledge bundle enables lifelong learning about Indigenous cultures and experiences
- IPERC mobilizes Indigenous voices and approaches
- Remembering Howard Vincent and striving for reconciliation
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