April 18, 2024

Our biweekly update keeps you informed on our network projects and initiatives! Below are a few highlights. Make sure to check out the latest issue below.

Can-SOLVE CKD Network Update

In this update we’ve collected our most recent tools, opportunities, and research projects that come together to advance a comprehensive education and cultural change in kidney health research that places patients at the forefront.

We believe it is through the advancement of patient-oriented research that a more equitable future for all is possible.

Remembering Mary Beaucage

It is with great sadness that we acknowledge the passing of Mary Beaucage, a fearless champion for kidney health whose contributions to the Can-SOLVE CKD community are too great to count.

Mary was a storyteller, advocate, teacher, mentor, and researcher who used her voice and experience to create a better world for those affected by kidney disease. Her energy and enthusiasm for this work were unmatched, and it was often said that Mary was a part of every committee, working group, and initiative across the network – only a slight exaggeration of her tremendous and tireless devotion to the cause of patient-oriented research.

PRO-Kid tool aims to improve kidney care for children

Currently, there is no standardized way to measure the symptom burden of children living with chronic kidney disease.One Canadian research team has developed a new tool called PRO-Kid (Patient-Reported Outcome measures in children with chronic Kidney disease) and is working to implement it into clinical care at multiple sites across Canada.

PRO-Kid was developed through interviews of children and adolescents affected by chronic kidney disease (CKD) and their families, and subsequently validated in a study of 100 children with CKD in Canada. Some young children and adolescents have difficulty communicating their symptoms to their nurses and doctors – and PRO-Kid should facilitate better communication of symptoms that are most relevant to patients. The tool is now ready to be introduced into clinical care, and the implementation process will be assessed at seven sites across Canada: Vancouver, Calgary, Winnipeg, Toronto, Hamilton, and two sites in Montreal.

Call for participants: Mind the Gap

Researchers from the University of Manitoba are inviting people who have experience with hemodialysis, their caregivers, as well as hemodialysis healthcare providers from across Canada to complete a survey in order to learn more about the gaps and needs in the current delivery of mental healthcare for people on hemodialysis and to receive suggestions.

The survey will take approximately 15-20 minutes to complete. All responses will be anonymous, meaning we will not be able to identify who has completed the survey.

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