Our robust national research program is based around what matters most to patients. Using the James Lind Alliance priority-setting method, we led a national consultation with patients, their families, and care providers to identify the top research priorities of people with kidney disease.
Understanding these priorities helped inform the design of research projects based around three main themes: identifying kidney disease earlier, developing better treatments, and delivering innovative patient-centred care.
Individual patient engagement plans have been developed by research project teams to specify patient partners’ involvement. These patient engagement plans span from “consult” to “collaborate” on the spectrum of engagement as defined by the International Association for Public Participation (IAP2).